Duty of Candour and Consent

Recent updates and current considerations in MS patient consultations

In the first of our, Neuro-Knowledge Sessions, this video featuring Dr Adam Wolverson and Shannon Gaughan from United Lincolnshire Hospitals NHS Trust provide a useful and concise update for anyone responsible for patient care and prescribing for people with MS.

Session Overview

In this session Dr Adam Wolverson will discuss:

  1. The purpose of valid informed consent
  2. The requirements and processes for gaining and recording consent - when, who and how and circumstances that may prevent valid consent
  3. Informed consent: information required and enabling patients to give it
  4. Updates in consent law, key considerations and exceptions
  5. When duty of candour applies - moral, ethical and legal, as well as contractual and statutory duty
  6. How duty of candour is met
  7. Notifiable incidents and 'near misses'
  8. Actionable tips and advice

Shannon Gaughan will demonstrate good practice approaches, using MS disease modifying treatments Tecfidera®   (dimethyl fumarate) and Tysabri® (natalizumab), as examples.

Shannon will join Adam in the studio after his talk to take part in a live Q&A session around these topics.

By the end of this session, delegates should be able to:

  • Describe the purpose of consent – valid and informed and understand recent updates in consent law
  • Obtain valid consent, understanding the requirements and processes – when, who and how
  • Enable patients to give informed consent
  • Recognise situations where duty of candour applies, moral, ethical and legal
  • Meet duty of candour requirements

Reflective questions (for your own records)

  1. Before viewing the module, write down what you understand by informed consent and duty of candour - Do you have any questions about the purpose or implementation of informed consent and duty of candour?
  2. After viewing, note what are the three most important ‘take-home messages’ you learnt by viewing this module about informed consent and duty of candour?
  3. Will you change your implementation of informed consent and duty of candour based on what you learnt from the module? If not, why not? If so, what changes will you suggest? Do you expect to face any challenges and how will you overcome these? How will you go about answering any further questions you have?

About the speakers

Dr Adam Wolverson
Clinical Director, Theatres Anaethesia and Critical Care Medicine, Lincoln

Adam has been a consultant in Intensive Care medicine for 18 years and has been Clinical Director for Theatres Anaesthesia and Critical Care at United Lincolnshire Hospitals NHS Trust since 2007. He also works as a major trauma consultant at Nottingham University Hospitals. He is the quality and service improvement lead for Mid Trent Critical Care Network, Co-Clinical Governance Lead for the East Midlands Major Trauma Network and a member of the East Midlands Clinical senate, he also served for three years as member of the national Clinical reference group for Adult Critical Care.

His areas of clinical interest include sepsis and major trauma care. In his managerial roles he has lead several Network wide quality improvement and clinical governance projects and his managerial role includes managing adverse and serious incident investigations and undertaking duty of candour disclosures. He is also a member of, and has served two terms as chair of the Lincolnshire Clinical Ethics committee.

Shannon Gaughan
MS Advanced Practitioner and Clinical Nurse Specialist, Lincoln

Shannon is an experienced MS Clinical Nurse Specialist based at United Lincolnshire Hospitals NHS Trust. Over the last 20 years, she has gained significant experience in all aspects of MS nursing practice and management.

Shannon qualified in 1989, working first at Queen’s Medical Centre, Nottingham University Hospitals NHS Trust as a nurse in neurosciences. In 1995 she was appointed as one of the first MS Nurse Specialists in the UK to set up a dedicated MS service, and she worked with patients to design a service around their needs. She moved to Lincoln in 2003 to set up the MS service, and established Lincoln as a prescribing centre for the Department of Health Risk Sharing Scheme. Shannon obtained an MSc in advanced nursing practice in 2003 and qualified as a non-medical prescriber in 2014. She is passionate about advanced nursing practice relating to patient-centred care around the ever-changing needs of people with MS.

Shannon has taught undergraduate student nurses and GPs on MS and speaks at national and international conferences on many aspects of MS care and setting up patient-centred services.

Biogen-08882 Date of prep: May 2019